my struggle with migraine

m. werneburg, 2017.02.09

In 1972, I fell from the top of a slide in a playground and suffered a severe concussion. My eyes never found alignment again, and my optometrist tells me that my right eye, jostled from its natural position all those years ago, has been slowly ossifying due to not properly closing at night (the eye sits forward in my skull) and is full of floaters as a result. Worse, though, I joined my mother and grandfather in getting regular migraines.

They stated when I was five, according to my mother, and have been going ever since. As I write this, I'm happy to report that I've had only two migraines in the past ten days; this is about 1/3 of my normal. And by migraine, I do mean the searing pain on one side of the head with: muscle cramping in the neck and shoulder; blurred and restricted vision; nausea; sensitivity to light, smells, and sounds; a runny nose; tingling in scalp and gums; etc. I don't mean a "bad" headache suitable for off-the-shelf Tylenol.

I've had two MRI's done. I've done the test for a perforation in the wall between the halves of my heart. I've done allergy testing – wheat and dairy turned out to be triggers. I've been to specialists in neurology and chronic pain. I've tried at least five prophylactic medications (all failed to treat the pain, but they introduced a raft of side effects) and two daily supplements. I've cut out caffeine, alcohol, chocolate, and 'aged foods'. I'll probably wind up doing a sleep test, when I see the pain specialist again in 3-4 months. There's no demonstrable physiological sources of my headaches, I'm just one of those millions of lifelong sufferers.

My triggers are: changes in the weather, especially the establishment of a steady SW wind (Chinooks were a sure thing when I lived in Calgary); disruptions in sleep (why, oh why did I become a parent); champagne; changes in stress load; overheated rooms; sustained dehydration; the onset of a cold, especially a sinus infection; garlic, especially baked; caffeine. The weather factor is one that the medical community likes to downplay (it's always something) but it's a certainty. I'm on the same schedule, with minor deviations, as one man and one woman at the office, my mother, and one of my mother's acquaintances. My aunt also sometimes joins the fun.

some success

Here's the routine I'm currently on to deal with the bloody migraines:

At the same time, I'm now keeping a log of the migraines. Specifically, I'm tracking:

I use a software tool and database that I built. We'll see what patterns emerge, if any.

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reader comments

2 in 10! what great news. hugs I truly sympathize. what's the database? anything that can be given out to other sufferers?

Audrey
2017.02.09

The database is based on the CMS I made for this website. I could weld a user authentication piece to it and make it available for the public, for sure. I'll have a look at that in the weeks to come.

-Michael